Day 2

We know she has a lung infection. Period. It is like viral pneumonia but they have not specifically verified what kind and really don't have a lot of answers.   But they keep digging so I know they aren't satisfied with what we know at this point. 

We are waiting on a pulmonologisr and an ENT.  They have several other tests scheduled to get to the bottom of this.  For whatever reason they weren't able to do those tests yesterday.  

One moment she is giggling and acting normal.  The next minute she says her chest hurts and just wants to sit and color or be held.  I don't get a lot of questions answered yet but I guess that's better than them trying to answer questions they really don't have answers to yet. 

They are also going to reevaluate her heart murmur just because we are here.  There isn't any worry or fear regarding it, but it's been a few years since the cardiologist tracked it with an ultrasound and since she is here there is no reason not to. 

We are doing good but it's just unsettling to be here without many answers. Thanks for checking in on us.  Depending on which tests will actually happen today we may not be able to have many visitors - one test she will be put under for so there will be a lot of sleeping afterwards.  If you're planning on coming, please text me first.  Thanks for all of your support and prayers. 

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Update: 

Okay so big problems. 

The lung infection explained last night is not in any way what is wrong with her.  Apparently one of the nurses overheard the Dr group discussing it as an option and just wrote it down as gospel and passed it along to the night nurse as the reason she's here.  They have filed a committee meeting and disciplinary action to figure out how and why this could have happened and been passed along to me the way it was.  They are not happy.

But on the other hand we still don't have clear answers.  The Pulmonologist and ENT will be here today.  The GI Dr is out until Monday.... Yes Monday. 

She said If  between all of them they can decide she is stable enough to go home until Monday they may let her out.  If not she is here until Monday (worst case scenario). 

The reason is the amount of blood and the fact that she was anemic when she came in causes them concern over blood loss somewhere. 

St. Francis Children's Hospital just got real

This is my 4th summer with Shepherd's Fold Ranch and my 4th week of falling in love with the people and kids from Camp Strong with St Francis Children's Hodpital.  Watching children with cancer or cardiology challenges be able to come to summer camp and chase frogs and complain about missing mom's cooking and attending Karate classes like any other kid is so endearing. I'm so grateful God has allowed me to see these things. 

But last night my relationship with them just got REAL.  Piper has had a few bloody noses - very minor ones, and on occasion has coughed up tiny amounts of blood.  Last night however the episode was significantly more severe.  

We were directed to bring her to the ER here and we have been put through a battery of tests, with more to come. 

There have been a few things discovered but no answer as a whole yet.  On the schedule for some big tests today.  

Everyone here has been wonderful and just like I would expect with what I know of them from camp!   

We can't have a lot of visitors yet as we are still in the middle of tests.  But if anyone is down this way and has a Junie B Jones, Hank The Cowdog, or Boxcar Children book the would want to bring by... Maybe even one of the new more adult coloring book and markers (she has kind of gotten into coloring with those)  that would be great!  

Thanks for caring.  When there is something besides casting a wide net I'll update, but for now I'm choosing not to spend any time verbalizing all the things they are looking for. Until they give us a definite answer, we are just going to pray and let them talk about all the scary stuff. 

You can pray for her, and us, but for now, if you want to get to know the place I work and the place taking care of us, follow this link.   

http://m.tulsaworld.com/news/health/camp-strong-where-children-with-heart-disease-or-cancer-can/article_4d3b54d5-6884-56fa-abca-a7f04436108d.html?mode=jqm